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Hydrocephalus

National Organization for Rare Disorders, Inc.

Important

It is possible that the main title of the report Hydrocephalus is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Hydrocephaly
  • Water on the Brain

Disorder Subdivisions

  • Communicating Hydrocephalus
  • Non-Communicating Hydrocephalus
  • Obstructive Hydrocephalus
  • Internal Hydrocephalus
  • Normal Pressure Hydrocephalus
  • Benign Hydrocephalus

General Discussion

Hydrocephalus is a condition in which abnormally widened (dilated) cerebral spaces in the brain (ventricles) inhibit the normal flow of cerebrospinal fluid (CSF). The cerebrospinal fluid accumulates in the skull and puts pressure on the brain tissue. An enlarged head in infants and increased cerebrospinal fluid pressure are frequent findings but are not necessary for the diagnosis of Hydrocephalus. There are several different forms of Hydrocephalus: communicating hydrocephalus, non-communicating hydrocephalus or obstructive hydrocephalus, internal hydrocephalus, normal pressure hydrocephalus, and benign hydrocephalus.

Resources

March of Dimes Birth Defects Foundation

1275 Mamaroneck Avenue

White Plains, NY 10605

Tel: (914)997-4488

Fax: (914)997-4763

Tel: (888)663-4637

Email: Askus@marchofdimes.com

Internet: http://www.marchofdimes.com



The Arc

1825 K Street NW, Suite 1200

Washington, DC 20006

Tel: (202)534-3700

Fax: (202)534-3731

Tel: (800)433-5255

TDD: (817)277-0553

Email: info@thearc.org

Internet: http://www.thearc.org



National Hydrocephalus Foundation

12413 Centralia Rd.

Lakewood, CA 90715-1653

USA

Tel: (562)924-6666

Fax: (562)924-6666

Tel: (888)857-3434

Email: nhf@earthlink.net

Internet: http://www.nhfonline.org



Hydrocephalus Association

4340 East West Highway Ste 950

Bethesda, MD 20814

USA

Tel: (301)202-3811

Fax: (301)202-3813

Tel: (888)598-3789

Email: info@hydroassoc.org

Internet: http://www.hydroassoc.org



International Federation for Spina Bifida and Hydrocephalus

Cellebroersstraat 16

Brussels, B1000

Belgium

Tel: 32025020413

Fax: 32025021129

Email: info@ifglobal.org

Internet: http://www.ifglobal.org



NIH/National Institute of Neurological Disorders and Stroke

P.O. Box 5801

Bethesda, MD 20824

Tel: (301)496-5751

Fax: (301)402-2186

Tel: (800)352-9424

TDD: (301)468-5981

Internet: http://www.ninds.nih.gov/



Shine

42 Park Road

Peterborough, PE1 2UQ

United Kingdom

Tel: 01733555988

Fax: 08454507755

Email: info@shinecharity.org.uk

Internet: http://www.shinecharity.org.uk/



Hydrocephalus Support Group, Inc.

1933 Mistflower Glen Ct.

Chesterfield, MO 63005-4236

USA

Tel: (636)532-8228

Fax: (314)251-5871

Email: hydrob@earthlink.net



Birth Defect Research for Children, Inc.

976 Lake Baldwin Lane

Orlando, FL 32814

USA

Tel: (407)895-0802

Email: staff@birthdefects.org

Internet: http://www.birthdefects.org



Genetic and Rare Diseases (GARD) Information Center

PO Box 8126

Gaithersburg, MD 20898-8126

Tel: (301)251-4925

Fax: (301)251-4911

Tel: (888)205-2311

TDD: (888)205-3223

Internet: http://rarediseases.info.nih.gov/GARD/



Hydrocephalus Foundation, Inc.

910 Rear Broadway

Route 1

Saugus, MA 01906

Tel: (781)942-1161

Fax: (781)231-5250

Email: HyFII@netscape.net

Internet: http://www.hydrocephalus.org



Spina Bifida & Hydrocephalus Association of Ontario

555 Richmond St W

PO Box 103

Ste 1006

Toronto, Ontario, M5V 3B1

Canada

Tel: 4162141056

Fax: 4162141446

Tel: 8003871575

Email: provinivial@sbhao.on.ca

Internet: http://www.sbhao.on.ca



Spina Bifida Hydrocephalus Queensland

PO Box 8022

Woolloongabba

Queensland, 4102

Australia

Tel: (07) 3844 4600

Fax: (07) 3844 4601

Email: info@sbhqueensland.org.au

Internet: http://www.spinabifida.org



Dandy-Walker Alliance, Inc.

10325 Kensington Pkwy

Suite 384

Kensington, MD 20895

Tel: (877)326-3992

Email: comments@dandy-walker.org

Internet: http://www.dandy-walker.org



International Hydranencephaly Support Group

11634 203rd Street

Maple Ridge BC, V2X 4T9

Canada

Tel: 6044598691

Email: angelbearmom@shaw.ca

Internet: http://www.hydranencephaly.com



Chiari & Syringomyelia Foundation

290 Broadhollow Road, Suite 210E

Melville, NY 11747

Tel: (516)228-3565

Internet: http://www.CSFinfo.org



Fetal Hope Foundation

9786 South Holland Street

Littleton, CO 80127

USA

Tel: (303)932-0553

Tel: (877)789-4673

Email: info@fetalhope.org

Internet: http://www.fetalhope.org



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to MyD-H, the Dartmouth-Hitchcock patient portal. You must be a registered MyD-H user for the Lebanon, Manchester, or Nashua locations to access this site.

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  1/8/2007

Copyright  1984, 1985, 1987, 1988, 1989, 1992, 1995, 1997, 1999, 2002, 2007 National Organization for Rare Disorders, Inc.

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